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Welcome to the Heart Community!

Use this page to learn about HLHS.  There is a lot of information out there, and we endeavor to keep the links in the pages below up-to-date, with good information from reliable source.

All About HLHS Many links to informative and educational sites which will help you understand HLHS from leading medical establishments.
NPC-QIC The mission of NPC-QIC is to dramatically improve the outcomes of care for children with cardiovascular disease. The NPC-QIC has built a quality improvement and research network of pediatric cardiology clinical care teams, and, in partnership with Sisters By Heart, with patients, and families.
Practitioner Posts Practioners directly involved with HLHS provide their experiences
Research Explained Medical articles are complex.  Here are some articles breaking down the facts about medical research for HLHS patients provided to us from NPC-QIC.
Linked By Heart Advances the mission of Sisters by Heart by providing additional regional and local support and resources to families affected by Hypoplastic Left Heart Syndrome.  Linked By Heart also provides an extensive password-protected secure database for HLHS families to connect and network nationally
Brochure Downloads Brochures designed to be printed
Article Downloads Full length articles for printing
CHD organizations A list with links to other helpful organizations in the Congenital Heart Defect community