Nominate A Newly Diagnosed Family

If you have learned recently that your child has Hypoplastic Left Heart Syndrome please fill out this form to nominate your family for a care package.  You may nominate another family, but please use the email address of the child's parent to sign up.  All information provided is never divulged to third parties outside the Sisters By Heart and Linked By Heart organizations.

The fields marked with an asterisk (*) are required.  If you have any questions, please email us at

Account Information
Parent's First Name *
Parent's Last Name *
Parent's Email *
Password *
Confirm Password *
Your Information (if different from above)
First Name
Last Name
Patient Information (if known)
First Name
Last Name
Date of Birth or Expected Delivery Date (mm/dd/yy) *
Diagnosis *
Referred By
Delivery Address for Care Package
Street *
City *
State *
Zip Code *
Phone Number *
Comments, Questions or Special Instructions?
Check Yes if you would like the Mayo Clinic to contact you about Cord Blood Banking
  Yes         No
Let us know the names, gender and ages of siblings, to include special items in the care pack for them
Any Other Comments?