Wednesday, April 2, 2014
HLHS Collaborative: March's Action Period Call
If you've ever wondered what goes on backstage with NPCQIC, March's Action Period Calls focused on some of the "behind the scenes" work within the collaborative. The call began with details about the monthly NPCQIC e-newsletter received by participating cardiac centers and parents. There is some concern regarding the rate at which the newsletters are opened/read, however, each month, 80-90% of centers have at least one member utilizing the newsletter. Centers and participants discussed with NPC leaders how the information shared via e-newsletters might be more effective.
Conversation quickly shifted to planning and preparations for the Learning Session taking place April 25th and 26th in Cincinnati. Centers will be busy doing their homework to prepare and sharing tools that others can learn from.
For parents attending the spring Learning Session, an orientation call will be held next week to help newly attending parents feel comfortable in NPCQIC's process and in working with dedicated groups of medical professionals.
For those who have attended a Learning Session in the past, please share your experience and for first timers, what questions do you have about what to expect? Not able to attend? Don’t worry, updates will be provided via Twitter, #NPCQICLS.
March's calls ended with an “unveiling” of the reorganized Collaborative SharePoint site. This site manages and stores NPCQIC's important information - tools that centers share and data for each participating cardiac center. The site is not available to parents - except for those on the Parent Leadership Team, but keeping with the theme of parent engagement, NPC involved a parent in the reorganization process. The site looks much cleaner and is easier to navigate.
While we don't always see "behind the scenes," there is much work going on within NPCQIC, all of which assists centers to collaborate and engage in improved care for our children.
We're very much looking forward to seeing many of you in Cincinnati in a few short weeks! Until then.... virtual heart hugs.