HLHS Health Journal – New App to Keep Track of Health


Sisters by Heart is excited to announce a partnership with Mayo Clinic’s Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) and Empatheia to provide the HLHS Health Journal, a new app for individuals and families to help keep track of important daily vitals and improve clinical care.


HLHS Health Journal makes it easier for individuals and parents to keep track of health information including heart rate, nutrition, medication, body weight, and oximetry levels and has the ability to take photographs and capture videos. The app provides a unique opportunity to collect, monitor and share information with medical care teams by email and to voluntarily participate in research studies to improve the overall care of patients.  By sharing daily HLHS Health Journal entries, individuals are leading the transformation of the future for HLHS by helping to develop standards of care for all HLHS patients. When doctors and researchers know more about the daily lives of all HLHS patients, they can provide them with better treatment options in the future.


HLHS Health Journal can be downloaded to an iPhone or iPad through the App Store. While currently only available on an iOS platform, the Android version will be coming in the near future.  


Life beyond the surgeries should not be a guessing game.  Lead the transformation of the future - one HLHS Health Journal entry at a time. Download the app today.