Hope for Superheroes: Fontan care packages!

Four years ago, Sisters by Heart was born out of a mission to provide support and hope to newly diagnosed HLHS families. We are well known for our signature Norwood care packages, which include all the essentials a family needs to support a newborn child in the hospital recovering from open-heart surgery – and most importantly, HOPE! We have loved supporting newly diagnosed families as they have begun their journeys and joined our heart family.

But we wanted to do more, to branch out, to provide even more support to the families we love and serve. And so the “Fontan care package” idea was born. Our Board has been hard at work over the past year deciding on the perfect items to include in a care package for a toddler or preschooler recovering from open-heart surgery. We wanted to include items to empower a young child and his or her family, and to pay homage to just how strong these kids are, and just how far they’ve come. And, of course, to give our customary dose of HOPE!

We’re thrilled to announce today is our official launch date for our Fontan superhero care packages!

Before we launched, we needed someone to test out our care package, to make sure it was just right. We were thrilled to have that recipient be this cutie, Kate.

Kate has had a particularly rough go of it, including an ecmo run and a Glenn takedown. She likes to give her medical team a run for their money and it is no small feat that she has arrived at the Fontan. Her family received a Norwood care package when her mother was still pregnant with Kate. And her amazing mama, Erica, is well known and well loved by our board. So there was no question that she was our perfect first recipient!

Our Fontan superhero care packages include a super-Fontan cape and mask, a coloring book specially designed just for SBH and crayons, a hospital gown, silicone bracelets for mom, dad and HLHSer, stickers for siblings and, from time to time, a few extra goodies! And it’s all wrapped up in a cool Fontan superhero drawstring backpack!

 

 

We’re thrilled to offer our Fontan care packages free of charge to HLHSers heading into their Fontan. To nominate your child or another family, simply go to our website and complete the form here  Please note the child must have a surgery date before you can nominate them for a care package.

Super Fontan kits will also be available for purchase for $20 for those kiddos who have already had their Fontan or are otherwise not eligible for a care package. The Super Fontan kits will include the signature bag, coloring book, mask, and superhero cape. To purchase a Super Fontan kit, please checkout here:

Sisters by Heart is so excited to honor these special warriors and their families! Thank you Kate and Erica for being our first recipients and models! We would also like to extend a special thank you to our coloring book illustrator, Dianne Frestel, for generously donating her time and talent into illustrating this beautiful coloring book for our community!

Happy Fontanning and make sure to post pics of your Fontan superheroes – and tag SBH!!

Photobucket

Previous Blog Posts

Tuesday April 21st, 2017: Parent Scholarships NPC-QIC 2017

Monday, August 8, 2016: On Finding His Tribe

Thursday, November 19, 2015: You're the General Manager

Monday, July 20, 2015: Fontan Care Package Launch

Monday, June 8, 2015: SBH Supports Full Transparency in Outcomes Data

Wednesday, May 6, 2015: New Care Package Items

Wednesday, April 29, 2015: A Tea Just for You: Heart Mom Comfort Tea!

Monday, March 2, 2015: Parent Travel Scholarships - NPC-QIC 2015 Spring Learning Session!

Tuesday, February 17, 2015: NPC-QIC/SBH Response to HLHS Statistics Shared by the CDC

Monday, February 2, 2015: Fundraising with Heart: Tink & Key

Thursday, January 29, 2015: January 2015 NPC-QIC Action Period Call Update

Wednesday, January 28, 2015: Fundraising with Heart: The Baby Blue Sound Collective

Thursday, December 18, 2014: Sharing HOPE: An exciting opportunity

Tuesday, September 30, 2014: HLHS Collaborative: September's Action Period Call

Tuesday, August 26, 2014: Parent Travel Scholarships - NPC-QIC 2014 Fall Learning Session!

Monday, August 18, 2014: CHD Kids and School Special Services

Monday, August 11, 2014: Using Crisis to Create: The Asher James Foundation

Wednesday, July 2, 2014: HLHS Collaborative: June's Action Period Call

Monday, June 23, 2014: Pink for Paul!

Friday, June 13, 2014: Why There are No "Brothers by Heart"

Tuesday, May 13, 2014: What If...

Wednesday, April 2, 2014: HLHS Collaborative: March's Action Period Call

Wednesday, March 5, 2014: HLHS Collaborative: February's Action Period Call

Saturday, February 15, 2014: Shopping for a Cause

Thursday, February 6, 2014: HLHS Collaborative: January's Action Period Call

Friday, January 17, 2014: Research Opportunity: Prenatally Diagnosed Moms Need Apply!

Monday, January 6, 2014: HLHS Collaborative: December's Action Call

Friday, December 27, 2013: Dual Perspectives: Growing Up with HLHS

Wednesday, December 4, 2013: Take Action: Be Part of the Solution

Tuesday, December 3, 2013: Join Millions for #GivingTuesday

Monday, November 18, 2013: A Mother's Perspective: The Other Sibling

Wednesday, November 6, 2013: A Unique Opportunity with What to Expect

Tuesday, November 5, 2013: Time to Vote!

Friday, November 1, 2013: 2nd Annual Sisters by Heart Avon Fundraiser

Thursday, September 12, 2013: Possibilities: Cord Blood Banking

Tuesday, September 3, 2013: A Unique Partnership

Tuesday, August 6, 2013: Fontan Series: Kylan's Story

Monday, July 22, 2013: Fontan Series: Lily's Story

Monday, July 15, 2013: Fontan Series: Aly's Story

Monday, May 13, 2013: A Heartfelt Donation: Medical Masks in Anya's Memory

Monday, April 22, 2013: Parent's Perspective: What to Pack for the Hospital

Thursday, April 18, 2013: Getting a 2nd Opinion: An Inpatient Perspective

Monday, April 15, 2013: Getting a 2nd Opinion: An Outpatient Perspective

Saturday, February 9, 2013: It's February, Celebrate Black History Month!

Monday, February 4, 2013: A Heartfelt Donation: eBay Foundation

Friday, February 1, 2013: A Unique Collaboration: SBH and the NPC-QIC

Monday, January 28, 2013: NPC-QIC Winter Learning Session

Friday, December 21, 2012: A Mothers Perspective: Feeding issues

Wednesday, December 5, 2012: A Heartfelt Donation: Smart Mom Jewelry

Sunday, November 18, 2012: Heartfelt Donations: aden + anais and The Dorsett Family

Tuesday, November 13, 2012: Gifts from the Heart: Stella & Dot

Monday, November 5, 2012: Creative Donors: United Way Workplace Campaigns

Sunday, November 4, 2012: A Mother's Perspective: Healing a Hurting Marriage

Sunday, October 28, 2013: A Heartfelt Donation: Avon

Saturday, October 27, 2012: A Gift for Our Fighters

Monday, October 15, 2012: Stories of Hope: Tyler Sajdak

Monday, October 8, 2012: A Heartfelt Donation: The Mended Heart

Monday, September 24, 2012: Fun in the Sun: Year Two

Sunday, September 16, 2012: Creative Moms: Warrior Scrapbooking

September 11th, 2012: Remembering Our Heroes

June 6th, 2012: Top Ten Discharge List