Hypoplastic Left Heart Syndrome (HLHS)

HLHS is a severe congenital heart defect in which the left side of the heart is underdeveloped. The heart's left side has the job of pumping oxygenated blood into the aorta, the large artery that carries blood to the body. In a child with HLHS:

  • The mitral valve, which separates the two left chambers of the heart, is too small (stenotic) or completely closed (atretic)
  • The left ventricle (the lower, pumping chamber) is very small
  • The aortic valve, which separates the left ventricle and the aorta, is too small (stenotic) or completely closed (atretic)

Sisters by Heart (SBH)

 We are a volunteer organization that strives to help moms with newly-diagnosed babies.  We provide care packages to make your stay in hospital a little easier.  We also provide information and links to many resources to help you better understand HLHS. All our volunteers are moms with children who have HLHS and who understand what you are going through.  We are here to help!

Sisters by Heart is funded entirely by tax-free donations.

Mission Statement

Sisters by Heart provides support, education, and empowerment to families affected by Hypoplastic Left Heart Syndrome (HLHS) - from initial diagnosis and beyond.

National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC)

Sisters by Heart is partnered with NPC-QIC to decrease mortality and improve quality of life for infants with single ventricle congenital heart disease and their familites. We are working with a vision to dramatically improve the outcomes of care for children with cardiovascular disease.Together, we have built a quality improvement and research network of pediatric cardiology clinical care teams, patients, and families.